All posts tagged: prenatal diagnosis

The Devastating Fallout from Prenatal Testing

As we get older, we often tend to situate our lives in and around historical events, which serve as place markers and give us some frame of reference, especially when the events are personally salient. Because of my field and my personal experience, I see my life as demarcated in part by events in the history of disability in this country. For example, my son Tommy (who has Down syndrome) was born in 2007, the watershed year in which prenatal testing for chromosomal disabilities was recommended for all pregnant women by the American College of Obstetricians and Gynecologists and which also heralded unprecedented technological advances in prenatal screening and diagnosis. I was born 42 years earlier, in July of 1965. In December of that same year, a professor of education named Burton Blatt, well respected in the field of disability, asked his friend Fred Kaplan to accompany him on a tour inside four institutions for persons with cognitive disabilities in four eastern states. Kaplan agreed and went along with a camera hidden in his clothes. …